Our blessings

Our blessings
Hello everyone!

Sunday, October 30, 2011

Sunday, October 30

ISAAC IS COMING HOME!  Today is the day!  I received a call from the hospital at 12:30 saying that we have clearance to pick him up.  The breathing monitor is charge, the oxygen is set up, his clothes are washed and the cameras are ready to go!  I guess we are ready to be a family of 4.  We went out for lunch, after church, today as a family of three for the last time. I think we are all ready.  Arianna is trying to take a nap before we go. David seems to think she can sense the excitement as she isn't really sleeping.  My mom and dad are coming up to visit for a while so we can get used to a routine.  I think one of the hardest parts is going to keep Arianna from being too much of his mama.  She wants to help so much!

I went to see him yesterday.  I have to admit it was nice to bring home his last bit of laundry and to take my last bit of pumped milk.  I was having a harder time with it last week but I now think I am ready!  We saw a family at church today who was in a similar situation with their son.  It was good to see how excited they were with us and how happy they were for us.  Stay tuned... I will continue to update even though he is home.

He did turn 6 lbs on Friday by the way... so we are bringing home a 6 pounder.

Thank you for all of your prayers!  Without them he wouldn't be where he is today and our family wouldn't be who we are either.  We are so appreciative of all of you!

Thursday, October 27, 2011

October 27, 2011

Papa Ivy here again giving the Lovliest Woman in The World a rest.  Well, we got some training on all of the "stuff" that will be coming home with Isaac (an apnea monitor, oxygen, nebulizer, oxcimeter, and our personal favorite,....caffeine).  He is not quite mature enough in his respiratory system to breath on his own, so the caffeine helps to stimulate him to breathe, and the monitors do, well,.....monitor. 

It's a bit overwhelming to say the least and it has been almost 3 years since we had a "little one" in our home.  We're both a bit nervous, but I'm sure it's just like riding a bike.  It'll come back quickly.  Besides,....we're anointed to be Isaac's parents. 

Arianna is excited as well to have her little brother come home soon.  It's looking like it will be this Sunday when he will make his grand entrance onto Longford Circle.  It will be soooo good to have him home and we're believing for a steady yet quick healing in his lungs. 

Got my flu shot today at Target,....OUCH!

Again, short and sweet.  Now off to bed.

Peace,

Papa Ivy

Wednesday, October 26, 2011

Wednesday October 26

Okay everyone, it is crunch time.  I apologize for not having written in a few days.  There are a few things going on that have kept me away from the computer in my free time.  They are projecting that Isaac will be coming home as early as this Sunday!!!! So, that being said, David and I are running around getting things done.  They are planning on sending him home on oxygen.  Tomorrow night we have a training session on how to use the oxygen tank.  With the tank comes a monitor which they have all said will unnecessarily go off in the middle of the night.. the true way of telling if Isaac is having an apnea episode is to look at him to see what color he is.  Since he had his last episode on Monday morning, he has to be 5 days free of the apnea before they will send him home.  Today is day one.  They started him again on caffeine (which they found that it reminds them to breathe) yesterday.  So, that is another thing that we have purchase, along with an inhaler, vitamins and formula.  All of this by Sunday.  The other thing is that I have been having some back pain which has moved into my left arm causing my fingers to be numb.  I have started treatments for that today.  Basically David is doing all of the running around to get things accomplished.  I am also trying to finish up work on Friday.  I plan to take at least the month of November off of work so I can get to know my son.  I have to admit that there are times where I don't feel as if I have had a baby.  I am nervous and excited all at once. 

Please pray for David and I as we go through this training together, that we get what is important accomplished by the time Isaac arrives home.  Thank you for your love and prayers.  Honestly, without them we would not be where we are today.  I hope to share Isaac with all of you soon.  I will post more pictures once he is home.

He is currently up to 5 lbs 13 oz.  We may be bringing home a 6 pounder.  He is nothing less than adorable and I know that once we are home together it will feel natural and wonderful!

Love to all!

Sunday, October 23, 2011

Sunday, October 23

Today I was the only one who went to visit Isaac today.  David still has a sore throat and Arianna has a runny nose.  We had to miss church again today, second week in a row, due to her runny nose.  Anywho Isaac has been having more of the brady cardia episodes lately.  Today they decided to perform a 12 hour sleeping test.  They do not count the brady's when he is eating (again the brady cardia is when his heart rate dips below a certain level due to him not breathing) but only when he is sleeping or resting.  They think that the reason why he is having them is due to reflux. This test is being formed as I type.  It is one with a probe down his nose that goes into his stomach.  I think Isaac has had more medical procedures performed on his 10 week old body then most people do by the time they are 40.  Anyway, I am believing that through these tests, and possible further action, that they will be able to pinpoint what is going on and that we will be able to bring Isaac home within the next few weeks.  He will be 38 gestational weeks old tomorrow.  This is only 2 weeks away from my original due date.  I think I am ready for him to come home now. I have his beds (one upstairs and one on the main floor) ready and his clothes washed. 

They are projecting that he will come home on oxygen (I might have already written this information) and therefore he will have monitors for us to watch.  This actually would be good for me since I don't want to stay awake every night to make sure he is breathing.  The monitors will alert us to anything that might be going on.

We will keep you updated on his progress even when he gets home.  Thank you for sticking by us through this process!

Friday, October 21, 2011

Friday, October 21

Happy Friday everyone!  I am glad it is Friday as I get to sleep in tomorrow!  That is of course if Arianna lets me. 

I went to visit Isaac tonight after work.  I had to miss last night's visit because I wasn't feeling very well.  I arrived about 4:30 to a very  hungry boy. I know he associates my voice with a full tummy.  He sure makes noises when he hears me come in the room.  He nursed for a while and took a great amount of food.  He seemed very uncomfortable and he seemed to be breathing very fast afterwards.  The nurse said that maybe he had some more nasal drainage.  He has been having a lot ever since he found himself in the isolation room a few weeks ago.  I am talking about adult size drainage... I noticed it seemed as if he was choking on something and couldn't breath.  His monitors didn't go off so I knew it wasn't that bad.  The nurse asked if I was alright if they suctioned out his nose (we had an episode a few days ago where the nurse suctioned too much, David has since had a conversation with the charge nurse so I think they are very sensitive to what they do in front of us... way to go David-our protector).  I agreed to a few suctions.  She did retrieve some that made him more comfortable.  Please be believing with us that the Doctors have wisdom about his nasal drainage as this could cause him to have the brady cardias if it isn't cleared up by the time he comes home. It is obvious that he gets distraught about the feeling.  His face gets a worried look, his mouth puckers and his eyes get big and he starts to look around vigorously.  His reflexes are too young and underdeveloped to know how to help him get it out of the back of his throat.

Please also pray with us that they doctors know exactly when the right time is for him to come home.   I am not in a hurry as I want him to be the healthiest he can be when he comes home.  I do not want to have to call 911...

Thank you, love all of you!

Wednesday, October 19, 2011

Wednesday, October 19

We had our meeting yesterday with the dietitian, occupational therapist, lactation consultant and the social worker.  It went well.  They mentioned that most likely he will be coming home on oxygen. Which means that we will have to go in for oxygen training and some basic CPR.  I am a little nervous about that but just like everything with this whole ordeal.... we will make it work and overcome every obstacle.  I also think I started the rumor around the NICU that he was coming home on Friday.  He will not, he had a brady cardia again this morning which bought him at least 5 more days.  He has to be 5 days free of those before they will allow him to come home. We are alright with that and are praying for more growth in his lungs and for them to be strong.  I do not want to bring him home and he have any episodes on my clock.  If he comes home on oxygen he will come home with all of the monitors as well.  Those that go off if something isn't right.  All of the nurses and doctor say though that if a baby comes home on oxygen they don't keep it for very long as they do really well at home.

Isaac is well over 5 lbs now and on his way to 6 lbs.  I was holding him tonight and wow is he getting thick in the middle.  It is confirmed he has a double chin.  I think he is even getting a fat roll right at his wrist.  Arianna never had rolls... she was always 25% in her weight as she has been growing.  She eats well and eats a lot at times so it is a wonder to me how she stays so thin. 

Tonight when we were sitting at the dinner table Arianna was drinking her milk.  She got excited and said "look, they are getting bigger!"  She was talking about her bones.  David has been telling her that milk helps her bones to grow.  I guess she picked up on that!  She went to the dentist today for the first time.  She received a good bill of health... I should hope so, she is only 2 1/2... we have been faithfully brushing those teeth.  One can never start too early with good hygiene!

Have a great rest of the week.

Sunday, October 16, 2011

Sunday, October 16

Hello again everyone.  It has been so long since I blogged.  I find myself busy getting ready (as much as I can) for Isaac's homecoming.  He has had a nurse over the past 2 days who is pushing to get him home I think.  She has mentioned a few times to us that the only thing that is keeping him in the hospital right now is the oxygen.  Today his oxygen is down to a level that babies can be sent home on an oxygen tank.  So depending upon how he reacts to the change... it could be later in the week.  We have a meeting with the hospital staff on Tuesday evening to talk about what it will look like when he comes home.  At that time I am sure they will give us a projected discharge date!

Today we have a 5 lb baby!  Weigh (get it) to go Isaac! He is quickly moving through my stored milk that is in the freezer... I am looking forward to when he comes home so he can nurse most of the time and then my milk supply can increase for him.

We are on the home stretch.  Please be praying for him to be physically ready to come home, for the nurses and doctors to have wisdom of when to send him home and for David and I to get all of our questions answered on Tuesday.  Questions are coming to me daily and I am writing them down so we can get them answered.  I just don't want to miss anything.

Have a great week!

Thursday, October 13, 2011

October 13, 2011

Isaac is slowly creeping up on 5lbs.  He is down to a .75L flow on his oxygen.  The less he gets, the more he is breathing on his own, which is a good thing.  Eating like a horse as usual, he nursed for 60 min. and ate nearly 2oz. again!  Whew!!!  T talked to the occupational therapist today.  According to the OT, he is making excellent progress.  He can hold his head up while on his tummy and then look each way before laying his heavy head back down.  Great news!  That's our Rocky. 

We meet with the physical therapist, occ. therapist, and some other medical professionals regarding what to do with Isaac on Tuesday, 10/18.  I have a feeling that he may be coming home in under 2 weeks, but we'll find out soon. 

That's all for now.  Short and sweet, just like our boy!

Love,

Papa Ivy

Monday, October 10, 2011

Monday, October 10

My weekend is coming to an close.... sad... Mom and dad were here for a few days which brought a lot of laughter into their lives.  I think Arianna loves to make them laugh.  She loves to hide from Poppy and Nena and she read books to each other.  Poppy had her in the back of his truck walking around (like he he did when he was a kid).  She seemed to not want to get out of the bed of his truck.

Isaac is doing well today.  I went there to spend an extended stay with him and ended up spending about 3 1/2 hours.  I have to say that is the longest I have been there visiting him.  He just wouldn't nurse.  He was so tired.  I think maybe he had a party in his crib last night because he was tuckered!  He had eaten earlier in the day and was awake but I guess he needed his beauty sleep.  He finished his blood transfusion today too.  So he had 2 of them over the past two days.  I just spoke to tonight's nurse.  She said that he ate 50 mls for her tonight and seemed to be awake.  Later tonight she was going to give him a "wishy washy" which she said would make him feel better.  I thought that was the cutest name for a bath!  She also said that he had a sore on the outside of his cheek where one of the stickers oare to keep his nasal cannula in place.  So she said that might have been irritating him which caused him not to eat very well earlier in the day.

One of the head nurses came by today and said once again that the only thing keeping him there is the oxygen. She decided to stop his caffiene today so he will not be getting any more doses.  She also said they will start weaning him off of some of the oxygen and other things so he will be ready to go home soon...We have an appointment with a hospital crew next Tuesday  to go over what will happen when he goes home... I am getting so excited.  I think the neighbors will think he is adopted.  As I don't look pregnant anymore (I can see my extra weight!) because I don't have the big tummy....

I better go.. have to start storing up on sleep before he gets home!

Sunday, October 9, 2011

Sunday, Octobedr 9

What another nice day here in Illinois.  David, Arianna and I went to a park this afternoon.  Arianna loves to swing.  She was the most adventurous than I have ever seen her.  She climbed ropes, stairs and slid down a the largest slide.  Then we found an empty soccer field and ran around in the open space.  I know it doesn't sound too exciting but where we live open grass with no one around is VERY rare!  The three of us ran a race back to the car.  We were all winded. Okay, I guess I need to start exercising again.

Today I went to see Isaac by myself.  David couldn't go because he has the sniffles.  The doctor decided to give him another blood transfusion.  Hopefully his last.  I decided to stay and watch him get the IV put in his hand.  I almost left before it started but am so glad that I stayed.  I was able to talk to him and comfort him the best I could while they were putting it in his hand.  He was such a trooper.  The nurse said that this transfusion should be the one that helps boost him in to being able to going home.  She said that what is keeping him there is his need for oxygen.  So this transfusion should help him with his oxygen level, help him not labor so much to breathe and to help his heart rate stay within range as it has been higher lately.

I took in the bottle for him to get used to.  I called the nurse tonight and she said he didn't do too well on it but that they would try again later.  I am off tomorrow due to Columbus Day.  Therefore, I will be going in early to see him tomorrow and for an extended stay. I love that boy!

Good night!

Saturday, October 8, 2011

Saturday, October 8

Hello everyone, it has been a while since I have posted.  Isaac is doing well.  He is definitely filling out.  Some of the smallest preemie clothes he is actually almost too long for.  Today he weighs in at 4 lbs 10 oz.  We might have a 5 pounder on our hand by the end of next week if he keeps gaining like he is.  He gained 2 ounces in one day!  He has been nursing very well over the past few days. Today Isaac nursed 38 ml which tire dhim out. David and I have to continually call or remind the nurses that I am coming to nurse at a certain time and ask them to give him only a snack if he is hungry an hour before I get there.  That has seemed to be helping. I also asked about nipple confusion and if the bottle vs. the breast vs. the pacifier would cause any.  I was told that preemies virtually never get nipple confusion.  They have removed his feeding tube so he is completely feeding from his mouth! One step closer to being home!

Last night the doctor was talking about a possible blood transfusion again due to his heart rate still being elevated.  The elevation is a sign of being enemic.  However, I think his coloring is so much better and he doesn't look as pale.  When I asked the nurse about it today she said sometimes if they give a blood transfusion too late in the game it actually hurts their development.  So please believe with us that the doctors and nurses have wisdom for about what is best for him in the long run.

Isaac sure looks good.  He hears our voices and opens his eyes and tries to find us.  My mom and dad are here this weekend and we are getting things ready.  We just got back from Babies R Us and picked up some things for when he comes home.  I bought one bottle for him.  The nurses suggested that I bring in a bottle that I plan on feeding him with when he is home (when David feeds him) or at the babysitters.  This is so we can make sure that he is accustomed to it and the flow of the milk out of that particular nipple.

It is a beautiful weekend here in Illinois.  Infact, I think after dinner tonight we will take Arianna to park to get her fill before the cold really sets in.

Have a great weekend!

Thursday, October 6, 2011

October 6, 2011

After all the kings horses and all the kings men did there best to find a virus, alas....there was none!!  They tested for influenza, RSV(common cold for adults), and other viruses/infections.  In just under a week he has gone from eating 35ml at once to 70ml just this morning!  The nurses and doctors have started "demand feeding" with Isaac right now to see how he does.  So everytime he opens his little eyes, in goes a bottle or mommy.  He has to have a minimum of at least 80ml every 8 hours,..I think.  Just for the record, we're not big fans of demand feeding.  We prefer a schedule.  Worked with Arianna, it'll work with Isaac. 
He is back in his old room.  Boy likes to travel!  Next step is to wean him of his nasal canula (the thing supplying air to his lungs).  He can't quite breathe on his own just yet and that's why it's there.  Met with the occupational/physical therapist and he is right on target with all his developmental goals.  Yayyyy!  Gained only 15grams, but a gain is a gain.  Arianna got to hold him yesterday and she is still on cloud 9!  We sang to him "Twinkle, twinkle, little star" as well as the alphabet.  Can't start too early, huh?

Neena and Papi are up from Keithsburg, IL to visit and continue to help us get ready for little man's homecoming.  Can't wait to have all my family under one roof.  I need more testosterone in this place! LOL! 

Look for pictures on this blog of Arianna holding Isaac and giving him kisses.  She is such a great "big sister" and will be a big blessing/help when he comes home.

We love you and thank you for allowing us to share our lives with you!

Peace,

Papa Ivy

Tuesday, October 4, 2011

October 4, 2011

Papa Ivy here once again for Mama.  Isaac is doing well and all of his tests have come back negative.  The nurses haven't suctioned any more green mucus out of him since he came in, which is a good sign.  He ate a whopping 50ml in one sitting today!!  That's up from 35ml yesterday.  Still eating like his papa.....

Spent some time with him today after work just holding him and kissing him on the head.  Changed his big boy diapers and took his temper,..all is well in both regards.  It's hard to imagine that in just five weeks will have been his "original" due date (when he was SUPPOSED to come out).  He just couldn't wait....sheeeeeesh!  T and I have fallen in love all over again with our little man.  We're also learning to help Arianna with adjusting to the new situation.  She is adjusting quite well but will get her world rocked when Isaac actually comes home.  All is well.

That's all for now.  Thank you again for allowing us to share this wonderful, trying, beautiful, and tiring season with you.  We love each and every one of you.  Peace.

Monday, October 3, 2011

Monday, October 3

I really thought I posted yesterday.  However, I guess not... anywho, I was extactic yesterday when I left the hospital.  I was able to spend about 2 hours with him which was so nice!  He looked really good and nursed his whole feeding and then some.  The nurse and I were so proud of him. I think I even saw a double chin???

Today I called for an updated and he had been having more of the brady cardias again. They also noticed that he had some colored drainage coming out of his nose.  They did a CBC and found that he has a virus.  They are not giving him any medications for it but they have moved him back from the immediate care unit to the intensive care unit and have isolated him in his own room.  They thought he might have a certain kind of virus and that test came back negative which was a huge blessing.  He looked really good though when David and I both visited, at two different times. When I arrived after work he was wide awake looking around and very content.  I was sad that they had just finished feeding him. However, he did take his entire feeding from the bottle rather than through the tube in his nose.  I wasn't able to nurse either since he had just been fed. Someone told me that I should have them give him today's pumped milk since it would most likely have the ability to help him fight off the virus since I have been around him yesterday.  Does anyone know if there is some truth to that? I know breast milk is a great help to their immune system but hadn't heard that specific detail.

Please pray for his quick healing from this virus and that they will not have to give him another blood transfusion as his white blood cell count is down.  The good thing is that the doctor that was on today was the one that goes to our church.  I know she hears from God and can help out anyway that she can.

Thank you everyone!

Saturday, October 1, 2011

Saturday, October 2

Good evening.  I hope this finds everyone well. Isaac is doing well.  I missed visiting him yesterday.  My second day of not seeing him.  It is difficult but I know he won't remember or even know I didn't visit him yesterday.  I did go today though, for a longer visit than normal.  He looks really good.  He was sleeping peacfully when I arrived.  He was swaddled and wrapped snuggly in his blanket.  I really like him being in an open crib.  I know I have said this before, but he is so accessible and I love to kiss his little head and this crib allows me to do this whenever I want!  I went during one of his feedings.  Today was the first time that the nurse weighed him before and after he nursed.  He nursed really well today and by the time he was done he had taken 20 ml of his 33 ml feeding.  The nurse and I were both amazed. 

He again has gained weight and now he ways 4 lbs 3.1 oz.  I had to have him undressed some while nursing so he would wake up and not be too comfortable where he would fall asleep.  His leg, arms and chest have all filled out so nicely that he doesn't look as if he has chicken legs any longer.  I think I even saw a double chin...

I am happy to say that I am moving forward in getting things ready for him.  I have a list of things I need to purchase before he comes home.  I know I better get ready!

Love to all!!! Have a good rest of the weekend.